Friday, October 15, 2010

Thank you, Mary


Thank you.. 10/15/2010
 
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A huge thank you has to go to Graceful Lady.... aka Mary... for giving me more strength than I knew I had.

Today was a good day.  Had the busiest day that I could have imagined at the Volunteer gig; finished the project I was working on.  The meds I am on are working. 

The person I am worried about Is Dave.  He is at times really out of sorts.  It worries me to no end.  He has to be OK for me.

I have seriously decided on Gasparilla as my comback.  Its about 4 months away, and I can do it.  The marathon is in a year and I can do it....  The cool part is that there is a convention in town the same weekend as Gasparilla.  I don't mind if my running friends meet the Haven folk esp since they are all educated and mature.  The rest of the gang (save a few folk) are questionable.

Insomnia is still an issue, but between that and the night sweats, I am thinking its more menopause than the MS.  I will eventually go see my GYN for just a general check up and find out what is happeming....

Friday, October 8, 2010

Continuing Nutty thoughts

I really am still wanting to do a marathon next year.  Based on how am moving around, this may become a reality.  Wish we still lived in Boston so that I could Tufts on Monday with friends.  This was one of my favorite evens when we lived there.. Sure that it is better today! I am SO anxious for everything to kick in so that I really want to join a real gym and go from there.  Workouts are so in my future... its been way too long. 

The diet really makes a difference.  I can feel that no alcohol is making a difference, as little as we drank.  It getting rid of the red meat that may be a little difficult.  I don't eat a lot of it to begin with, but just to get rid of it totally will be tough.  The last step will be dairy.  That may be the hardest, especially since cheese is such a huge part of my diet.  I must that Jen from TNT on sending me the about.com site with great recipes and ideas.  I need to try a bunch of recipes from there, and even though it may be a little bit of a gradual change to become vegan its gonna be worth it for my good health.

I am currently in the process of creating a new website. It really reflects me more than ever; centering on my running mostly and other things (Dave included) that I love. 

The volunteer gig is going well. I really wish this was a paying "real" job, because the people there and what they do is something I relly believe in.   I guess that is the most important thing right now is getting better and fulfilling my goals.

Tuesday, October 5, 2010

Nutty Thoughts

OK, this is getting really scarey.  I cannot believe how good I feel.  Dave is even noticing it.  I can walk around stores on my own without really any help.  I haven't been able to do that in almost 2 years.  I still think it has something to do with the mental state of mind of knowing something.  The injections are gonna be weird, but I can do it.

Something is definitely wrong with my state of mind.  I will do this, but it just seems so far fetched from something that I did not even think would be possible, even a few months ago,  I really want to do a marathon again.  Some friends are talking about Chicago next year.  That would be so cool.  The trick though is increasing my mileage.I am going to do a volunteer gig in Jacksonville in February.  This will really tell me where I am fitness wise.  The fact that I am thinking like this makes me happy.

The only sucky part of what is going on is the insomnia.  3 hours at a time of sleeping isn't good.....

Saturday, October 2, 2010

Feeling really good

I can safely say that if this feeling continues, the marathon dream nex year will be a reality.  The only side effect of the drug is that I had night sweats and a low grade fever last night.  I can deal with that.  Today, I was able to move about really well almost on my own.  This gives me lots of hope for really doing well going forward.  I *know* that my dream of a marathon in the next year will be a reality. 

On another note, why am I feeling so damn good, better than I have in two years?  I think my positive thinking and lots of love & prayers from my friends are helping as is lots of prayers from tons of folks on the outside...

Friday, October 1, 2010

Nervous about Injections

Just getting a little bit nervous for my injection training later today for the Avonex. On a positive note, I was pre-qualified into their program to get this drug at no cost.

I was finally able to get dave into the Florida Discount Drug program where some of his more expensive drugs are cheap. ANd he said he will go into the clinic to see if he can see a doctor for some new scripts and samples of some of the drugs he is taking. I have to call Shands to see about their program to see what I need to do for their care and if Dave is allowed to use it too. Plus he said he would look into the employflorida list for work. There a couple of jobs in the schools that seem good for him.

Thank you to everyone for the warm thoughts. They really help. I am still really puzzled about how I am feeling with less dairy, and "white" stuff and no alcohol. We aren't even going to a halloween party because of the temptation to drink... I really would like to go, but just the thought of non movement scares me. I think the non drinking will take a little getting used to, but if it means better movement and the possibility of hitting the road again, so be it. Its going to be a little hard in the beginning, but its practically been a month (with the exception of the lass of wine last week) that I had a drink...

Yes, I know I am babbling. But it makes me a little better to type out this stuff.