where to start, where to start....

ok, here is a very late blog.

the first thing is that i feel better than i have in a long time.  given the price of gas, i have to cutback on going to the gym.  it kills me, but you know, i gotta do what i gotta do.  money has been a huge thing for me, and it kills me.  guess that is one of the drawbacks to living in the country.

my biggest thing recently is actually getting some calls for jobs.  one of them is perfect, its a step into a really good company.  that seems to be a step in.  the best thng is getting into a good company.  granted the pay sucks, but ya know, it gets me out of the house.  and who knows. i may just have to prove myself fo  good real job.  i only need enough hours to get good decent money, and health insurance.

my other big happening is that i will be starting a trial for an ms drug.  all i have read abut this drug is good stuff.  someone who hasn't been able to walk or feel legs can do so now.  if all it means is hitting the road again, its worth any of the GI problems some people havehad.....   i have a race in mind, just a litle bit too soon o say anything.  its a supplement, so all the stuff i do now is not a pain.  i can still be doing it.

the biggest thing is that it is one year post being radioactive.  one of the regs that i had to abide by ends tomorrow.  if you know me and dave it is a huge thing for us....lets just say we have been counting downfor a couple of weeks.....you know how important some things (especially this) is to us.. we did what we had to, but let's just say its gonna be wonderful...

good news...

ya know,  monday was something that i really was dreading.  dreading because i did not want to hear anything negative.  mri's always were something that i hated.  still do.  they make me feel like toothpaste...  but you have to do what you have to do.

this weekend started good.  we went to the starfleet uss judah meeting on saturday.  still something doesn't feel like the fleet family it is supposed to be.  i am guessing it never will.  something about some other folk that make me feel welcome and not want to be involved. we weren't invited to go to something the next day, not that we would have gone, but it still would have been nice to be asked.

sunday we took a slow ride to gainesville.  really relaxing.

  monday was an mri first thing, and then a clinic appointment in the afternoon.  the clinic appointment had me scared straight.  i was hoping for good news.  i did get the good news i was hoping for.  there was no recurrence of the cancer.  made me so happy.  the ent doc somehow was pissed at the endocrinologist that did a fine needle aspiration through a neurofibroma, not a lymph node.  i cannot begin to tell you how much it hurt.  i have a huge tolerance for pain, and that really did hurt.  the ent did say she should have known better due to the tumor markers being undetectable that should be an indicator for not doing the fna.  she will be talked to, especially when i said that she said the hormone level was low and she wanted "to get lower"....
the "bad" part is something folks would kill for... a weight loss of 2.2 lbs in a little bit under 2 weeks.. i am small to begin with, and on me it looks like a lot.  i have to go back in 6 months to make sure nothing is there again, but i am told it is a normal thing for cancer patients, especially with follicular cancer

the ms will be handled next.  i have an appointment in june, hoping that i can get on tysabri.....  all the info sessions we have been to have very positive results.  i am thinking once i have that under control, i can actually really run outside as opposed to treadmill. joining anythime fitness was a great thing.  gotta go more often, that is the only thing that keeps my sanity.

dave is worrying me beyond belief.  he keeps getting sick (throwing up) and it is not due to something to we ate.  especially since the food is made with nothing but natural things.  he is keeping his sugars stable for him, 240 is good.  when he is keeping good sugars,  its when he gets sick.  hoping that the free care will get to him.  i am hoping to get involved with some woring stuff soon.  i am hoping that some money, will make us happy.  hoping to get something.  anything. 

hoping to see dad and jeanne in ca soon.  we need something to cheer us up and celebrate the good news...