I did a whole post, and somehow pressed the wrong button, so if you see the same thoughts twice, my apologies.
I am so motivated by my last post and the goals I have set for myself for the next year. It is a little tough to be thinking along those lines, but ya know, where there is a will, there is a way. The big thing is not to worry about the little things anymore... just the big things... like hoping that I will not be needing a biopsy when I find out the information about my biopsy last month.
I do have a couple of questions regarding the drug whose talk we went to on Saturday. The drug is called Ampyra, and is supposed to help with walking speed... if that means a PR in something, bring it on. It would be in conjuction with my Avonex, as a supplemental boost, but the more to get me "better", be better. W also found out about an MS Center in Tampa, I am just hesitant to go there, because I saw a physician at that practice, and he gave me seizure drugs, and didn't even consider me seeing one of the MS docs there. Gives me more confidence in having been seen by someone not worthy and not willing to go the extra step and do the testing. Sure, the cancer would have still been there, but I would have been on MS therapy for over a year if this was found then. Pisses me off to no end. . THe website says something about clinical visits one day a week, maybe I will call and get something closer to home. I'll have to call folks and get some feedback on this to see if its even worth making the appointment.
In other news, I did register with the MS society of fundraising for Gasparilla. Granted its not a lot of $$, but I have to do what I can. I am SO looking forward to the MS walk in March. Granted its yet something else happening on summit weekend, but you know, you have to do things for something I strongly believe in is important. Don't get me started on what some folks are going to say that we are "active" participants.
In yet other news, I am really worried about Dave. He is always sleeping. I know his blood sugar is really high, but this is so ridiculous that I am almost ready to make him to the ER, except that they would probably admit him and do all sorts of stuff to him... If this is until Saturday, I will do just that. Yes, having no insurance sucks, but little things are much more important,like making sure he feels okay.
More later as the mood hits me..
wait, I'm confused.
ReplyDeleteyou're worried about people saying something about y'all going to a MS walk that is the same time as the R2 Summit??
*rolls eyes* blow off summit, do something way more important and do the Walk
I just wish *I* could walk for more than 20 minutes without being in considerable pain :(
I concur, no insurance sucks piggy wonks