Its just really weird. I am moving around so much better these days... so much so since the diagnosis. Wonder if a lot of it is just mental or prayers being answered for a real recovery. I am thinking the latter, ITs a hard diagnosis to swallow, but I think I am doing OK, being very strong and trying to make the best of it. For the first time in MONTHS I think I can actually know that a treatment is there. I did some research and there is some drugs that will help me with movement as I know it. Just have to talk to the doctor about this... and there are diets that will help lots. I am not sure about not having any cheese or milk and be gluten free, but lots of veggies. I figure its just a low iodine diet for life. I can deal with parts of it like being alcohol free, but not sure about the cheese and milk....
The old person in charge of TNT, Bill, is now working for the MS Society locally and tells me that the support is there if i need it. I am going to call them to see if there is another doctor in town so that I don't have to go all the way to Gainesville. Bill also knows that I will comeback in the training world, and hopefully be a person people can come to for support.
Dearest Leslie,
ReplyDeleteMy prayers are with you and if you are feeling well - celebrate! And Leslie our well being is all mental - there is so much power our mind and emotions play. Love yourself and remember you are still recovering from the cancer surgery -- why confound things with another diagnosis? Why not give yourself some time to recover, get moving again, eat and get yourself strong and then if things are not going well, you can always see another doctor. YOU my dear friend have the power and I know how easy it is to get caught up in the patient role. I was about to do an infusion of reclast for osteoporosis and then I asked myself why am I doing this and spoke with my physical therapist who reminded me that I am not at risk for a fall. If we can release fear and move forward with confidence, love and joy knowing our bodies are wonderful and have the ability to heal, it makes the journey that much easier. Yes, Western Medicine is important but YOU are the most important part of your own healing journey. I hope this helps and remember it is only my opinion. Love you - Mary