this is the latest and greatest.... our move date is now january 6th to california. lets just say its babout 10 days sooner than we had planned. All the friends we are going to leave behind near and far is probably the toughest part of it...
i recently reconnected with an old boyfriend, no actually fiancee... and our last few chats/conversations are like time has never passed by. He understands how much more that i could imagine. .
I am hoping to make it up to New York and New England so we can see everyone.... we are going to misseveryone a lot. On that note, looking forward to seeing CapnHo and hopefully Towaway on Monday. We are both going to miss these guys the most... as they are some of Dave's best friends...
All I can say is thank goodness for facebook and email...
more later.
Thursday, December 22, 2011
Sunday, December 18, 2011
the latest and greatest news...
there is lots of good, no great things happening that some of you guys know about.... let's just say that i have not been this happy in a really long time. stuff needs to be finalized first before i say anything here. if you ask, i won't tell you! nothing will pry it out of me, even chocolate...
Wednesday, October 19, 2011
a tough week...
i have been so in posting... but finally have a few minutes to share the latest and greatest. well some great is in there, i think.
first of all, if i did not post it before, the tumor markers are non detectible which means, no cancer makesme ever so happy and even more grateful for dave being in my life and taking care of me. we have decided to move out of dodge and go somewhere else. gainesville seems like the way to go. this town is for suckers. docs are lousey.
we went to dave's at the walk in clinic, and he said we needed to go to the er and get a ultrasound to make sure there are no clots in the leg that he fell on at the dump a couple of weeks ago. we did that with the us coming out negative. one thing led to another, and he has been in the hospital since then. the diagnosis is cellutitis. they changed the drug and the doc says maybe finally home tomorrow.
I really miss dave and am sooooooooooooo bored sitting at the hospital. i will do anything to nurse him back to health.l
on the plus side i really have not been having too hard of time getting around... doing much more than i have in ages. the only change is that i havenot taken the trial drug in almost 2 weeks. i am beginning to think that the higher dosage may be bad for me..... i have been wandering reallly well around the halls. gonna keep doing it. does not seem like it should be that hard, and may be good for me. i did manage to walk a bit today, too. race and running are not that far behind, if this progress continues
first of all, if i did not post it before, the tumor markers are non detectible which means, no cancer makesme ever so happy and even more grateful for dave being in my life and taking care of me. we have decided to move out of dodge and go somewhere else. gainesville seems like the way to go. this town is for suckers. docs are lousey.
we went to dave's at the walk in clinic, and he said we needed to go to the er and get a ultrasound to make sure there are no clots in the leg that he fell on at the dump a couple of weeks ago. we did that with the us coming out negative. one thing led to another, and he has been in the hospital since then. the diagnosis is cellutitis. they changed the drug and the doc says maybe finally home tomorrow.
I really miss dave and am sooooooooooooo bored sitting at the hospital. i will do anything to nurse him back to health.l
on the plus side i really have not been having too hard of time getting around... doing much more than i have in ages. the only change is that i havenot taken the trial drug in almost 2 weeks. i am beginning to think that the higher dosage may be bad for me..... i have been wandering reallly well around the halls. gonna keep doing it. does not seem like it should be that hard, and may be good for me. i did manage to walk a bit today, too. race and running are not that far behind, if this progress continues
Tuesday, October 4, 2011
some catch up stuff
its been a long time since i posted and lots has happened. one is i was in the er on 1 sepember. i was brought there by ems, i had a high temp and it took a while to bring it back down. i don't remember a thing, which i am toldis a good thing. they said it was an uti. they did a blood culture which had a really weird outcome. i then had it repeated at shands with good results. proved to me that all needs to be done there.
even more proof of that was given that dave was in the hospital for a day and there were no answers to his weird pains. he was back in the er on sunday with no answers. a doctor's visit was the same today. we would have gone to gainesville, but we have no money for the drive there
speaking of gainesville, we hope to move there. a real city, with stuff going on all the time.... plant city is down right boring. we can count our friends on one hand in town and in tampa.... we thought it would be better here. if we did not move, maybe the cancer would not have happened nor the ms. i am just still so annoyed it took so long for the diagnosis that should have been done in january 2009 and not 'parkinson's disease' even my neuro thougtht that was silly...
even more proof of that was given that dave was in the hospital for a day and there were no answers to his weird pains. he was back in the er on sunday with no answers. a doctor's visit was the same today. we would have gone to gainesville, but we have no money for the drive there
speaking of gainesville, we hope to move there. a real city, with stuff going on all the time.... plant city is down right boring. we can count our friends on one hand in town and in tampa.... we thought it would be better here. if we did not move, maybe the cancer would not have happened nor the ms. i am just still so annoyed it took so long for the diagnosis that should have been done in january 2009 and not 'parkinson's disease' even my neuro thougtht that was silly...
Tuesday, June 21, 2011
its been a long time...
ok, firt and foremost, i feel incredible. i feel as i can go out and run. its so weird. i just have to take it easy. i feel as if i can do anything. not sure if its from the placebo or what. i am not sure what is going on. i just want to go and run. i know that its coming soon.
i got a job, not that it pays a lot, but it is a chance to work for a really good company. let us hope that it all works out. i am excited beyond words. it may make my dream of getting out there a reality, especially when it comes to running, being active, and with luck, my appetite coming back. i eat because i have to. i am now at my lowest weight since before the low point of the anoerexia. the plus point of the job, is health insurance. i can finally take over taking care of dave.
dave is doing much better... th isurance will help so much.
fridaly is our 21st anniversary. i shared video that dave put on fb. hope all of you guys can check it out. i am still insanely in love with dave, and it gets better everyday. i know that sounds really corny, but its true.
i got a job, not that it pays a lot, but it is a chance to work for a really good company. let us hope that it all works out. i am excited beyond words. it may make my dream of getting out there a reality, especially when it comes to running, being active, and with luck, my appetite coming back. i eat because i have to. i am now at my lowest weight since before the low point of the anoerexia. the plus point of the job, is health insurance. i can finally take over taking care of dave.
dave is doing much better... th isurance will help so much.
fridaly is our 21st anniversary. i shared video that dave put on fb. hope all of you guys can check it out. i am still insanely in love with dave, and it gets better everyday. i know that sounds really corny, but its true.
Sunday, May 8, 2011
the art of feeling good
i started a trial (from hopems.com) last week and i haven't felt better in two years since that faithful morning of the fall. i can now see marathons again in my future. just need to work up to them. training is a big thing. but with the "anytime fitness" membership that should not be a problem.
dave has been really worrying me of late. he had been getting really high blood sugars.... not good for a diabetic at all. i was scared he was not going to be around for me. he has been taking such good care of me through the cancer and the ms that it was time for him to get some care. i talked hm into a walk in clinicsee the doc who immediately did some blood work (all came out good) and gave him some much neece prescriptions. after one day, his blood sugar was way down. now he is scheduled for an ultrasound and weekly blood work for four weeks to make sure that the dugus are at the best level they can be.
oh ye, did i mention that i am moving better than have in two years. the fact that i can go from the car to the house with no isues is huge. the fact that i can get around on the outside with no help is huge..... and very exciting.
dave has been really worrying me of late. he had been getting really high blood sugars.... not good for a diabetic at all. i was scared he was not going to be around for me. he has been taking such good care of me through the cancer and the ms that it was time for him to get some care. i talked hm into a walk in clinicsee the doc who immediately did some blood work (all came out good) and gave him some much neece prescriptions. after one day, his blood sugar was way down. now he is scheduled for an ultrasound and weekly blood work for four weeks to make sure that the dugus are at the best level they can be.
oh ye, did i mention that i am moving better than have in two years. the fact that i can go from the car to the house with no isues is huge. the fact that i can get around on the outside with no help is huge..... and very exciting.
Sunday, April 24, 2011
where to start, where to start....
ok, here is a very late blog.
the first thing is that i feel better than i have in a long time. given the price of gas, i have to cutback on going to the gym. it kills me, but you know, i gotta do what i gotta do. money has been a huge thing for me, and it kills me. guess that is one of the drawbacks to living in the country.
my biggest thing recently is actually getting some calls for jobs. one of them is perfect, its a step into a really good company. that seems to be a step in. the best thng is getting into a good company. granted the pay sucks, but ya know, it gets me out of the house. and who knows. i may just have to prove myself fo good real job. i only need enough hours to get good decent money, and health insurance.
my other big happening is that i will be starting a trial for an ms drug. all i have read abut this drug is good stuff. someone who hasn't been able to walk or feel legs can do so now. if all it means is hitting the road again, its worth any of the GI problems some people havehad..... i have a race in mind, just a litle bit too soon o say anything. its a supplement, so all the stuff i do now is not a pain. i can still be doing it.
the biggest thing is that it is one year post being radioactive. one of the regs that i had to abide by ends tomorrow. if you know me and dave it is a huge thing for us....lets just say we have been counting downfor a couple of weeks.....you know how important some things (especially this) is to us.. we did what we had to, but let's just say its gonna be wonderful...
the first thing is that i feel better than i have in a long time. given the price of gas, i have to cutback on going to the gym. it kills me, but you know, i gotta do what i gotta do. money has been a huge thing for me, and it kills me. guess that is one of the drawbacks to living in the country.
my biggest thing recently is actually getting some calls for jobs. one of them is perfect, its a step into a really good company. that seems to be a step in. the best thng is getting into a good company. granted the pay sucks, but ya know, it gets me out of the house. and who knows. i may just have to prove myself fo good real job. i only need enough hours to get good decent money, and health insurance.
my other big happening is that i will be starting a trial for an ms drug. all i have read abut this drug is good stuff. someone who hasn't been able to walk or feel legs can do so now. if all it means is hitting the road again, its worth any of the GI problems some people havehad..... i have a race in mind, just a litle bit too soon o say anything. its a supplement, so all the stuff i do now is not a pain. i can still be doing it.
the biggest thing is that it is one year post being radioactive. one of the regs that i had to abide by ends tomorrow. if you know me and dave it is a huge thing for us....lets just say we have been counting downfor a couple of weeks.....you know how important some things (especially this) is to us.. we did what we had to, but let's just say its gonna be wonderful...
Wednesday, April 6, 2011
good news...
ya know, monday was something that i really was dreading. dreading because i did not want to hear anything negative. mri's always were something that i hated. still do. they make me feel like toothpaste... but you have to do what you have to do.
this weekend started good. we went to the starfleet uss judah meeting on saturday. still something doesn't feel like the fleet family it is supposed to be. i am guessing it never will. something about some other folk that make me feel welcome and not want to be involved. we weren't invited to go to something the next day, not that we would have gone, but it still would have been nice to be asked.
sunday we took a slow ride to gainesville. really relaxing.
monday was an mri first thing, and then a clinic appointment in the afternoon. the clinic appointment had me scared straight. i was hoping for good news. i did get the good news i was hoping for. there was no recurrence of the cancer. made me so happy. the ent doc somehow was pissed at the endocrinologist that did a fine needle aspiration through a neurofibroma, not a lymph node. i cannot begin to tell you how much it hurt. i have a huge tolerance for pain, and that really did hurt. the ent did say she should have known better due to the tumor markers being undetectable that should be an indicator for not doing the fna. she will be talked to, especially when i said that she said the hormone level was low and she wanted "to get lower"....
the "bad" part is something folks would kill for... a weight loss of 2.2 lbs in a little bit under 2 weeks.. i am small to begin with, and on me it looks like a lot. i have to go back in 6 months to make sure nothing is there again, but i am told it is a normal thing for cancer patients, especially with follicular cancer
the ms will be handled next. i have an appointment in june, hoping that i can get on tysabri..... all the info sessions we have been to have very positive results. i am thinking once i have that under control, i can actually really run outside as opposed to treadmill. joining anythime fitness was a great thing. gotta go more often, that is the only thing that keeps my sanity.
dave is worrying me beyond belief. he keeps getting sick (throwing up) and it is not due to something to we ate. especially since the food is made with nothing but natural things. he is keeping his sugars stable for him, 240 is good. when he is keeping good sugars, its when he gets sick. hoping that the free care will get to him. i am hoping to get involved with some woring stuff soon. i am hoping that some money, will make us happy. hoping to get something. anything.
hoping to see dad and jeanne in ca soon. we need something to cheer us up and celebrate the good news...
this weekend started good. we went to the starfleet uss judah meeting on saturday. still something doesn't feel like the fleet family it is supposed to be. i am guessing it never will. something about some other folk that make me feel welcome and not want to be involved. we weren't invited to go to something the next day, not that we would have gone, but it still would have been nice to be asked.
sunday we took a slow ride to gainesville. really relaxing.
monday was an mri first thing, and then a clinic appointment in the afternoon. the clinic appointment had me scared straight. i was hoping for good news. i did get the good news i was hoping for. there was no recurrence of the cancer. made me so happy. the ent doc somehow was pissed at the endocrinologist that did a fine needle aspiration through a neurofibroma, not a lymph node. i cannot begin to tell you how much it hurt. i have a huge tolerance for pain, and that really did hurt. the ent did say she should have known better due to the tumor markers being undetectable that should be an indicator for not doing the fna. she will be talked to, especially when i said that she said the hormone level was low and she wanted "to get lower"....
the "bad" part is something folks would kill for... a weight loss of 2.2 lbs in a little bit under 2 weeks.. i am small to begin with, and on me it looks like a lot. i have to go back in 6 months to make sure nothing is there again, but i am told it is a normal thing for cancer patients, especially with follicular cancer
the ms will be handled next. i have an appointment in june, hoping that i can get on tysabri..... all the info sessions we have been to have very positive results. i am thinking once i have that under control, i can actually really run outside as opposed to treadmill. joining anythime fitness was a great thing. gotta go more often, that is the only thing that keeps my sanity.
dave is worrying me beyond belief. he keeps getting sick (throwing up) and it is not due to something to we ate. especially since the food is made with nothing but natural things. he is keeping his sugars stable for him, 240 is good. when he is keeping good sugars, its when he gets sick. hoping that the free care will get to him. i am hoping to get involved with some woring stuff soon. i am hoping that some money, will make us happy. hoping to get something. anything.
hoping to see dad and jeanne in ca soon. we need something to cheer us up and celebrate the good news...
Thursday, March 24, 2011
some days are better than others
okay,
its been a while since i have written. there has not been that much that has been going on. yes, some days are better than others. i feel like i can do tons of stuff and there are others that the pain in my toes is just unbearable. i am so not into taking pain pills that i just live with it. i had a really bad stomach pains this wee that i don't want to do anything.
i don't want to use the wheelchair, but this weekend, it seems like it would be so much easier for dave. plus he would bring the "seated" cane for him since he has been not moving so well these days.
medically, things are okay. i went to the surgeon this week, and he even said that the biopsy that i had was not in a lymph node, but most likely in a fibroma. that is why the pain was so bad when the fine needle aspiration was done. because of the lab results (undetectable tumor readings), he thinks the cancer is not there. but to make sure, he is doing an mri, it sucks, but ya know he is right, better be sure than sorry. i just could handle the cancer by itself, but not so much so for the ms added in. like i said, there are really good days when i can do a ton at the gym, and others when all i want is to stay in bed.
the volunteer gig is no more for me. i just hate when i go somewhere and they assume that i will be there. a couple of phone calls to me would be nice. it just feels like i am being used. plus their power and phone/internet are going to be shut off for lack of payment. nope.. i would rather be home watching crap on tv and playing my fb games at home..... especially when there is no chance that it was going to become a paying gig -- not only for me, but for the folks that really have a job there.... they hadn't gotten paid in almost a year. time for me to do my own thing. and look for work that i would really enjoy....
its been a while since i have written. there has not been that much that has been going on. yes, some days are better than others. i feel like i can do tons of stuff and there are others that the pain in my toes is just unbearable. i am so not into taking pain pills that i just live with it. i had a really bad stomach pains this wee that i don't want to do anything.
i don't want to use the wheelchair, but this weekend, it seems like it would be so much easier for dave. plus he would bring the "seated" cane for him since he has been not moving so well these days.
medically, things are okay. i went to the surgeon this week, and he even said that the biopsy that i had was not in a lymph node, but most likely in a fibroma. that is why the pain was so bad when the fine needle aspiration was done. because of the lab results (undetectable tumor readings), he thinks the cancer is not there. but to make sure, he is doing an mri, it sucks, but ya know he is right, better be sure than sorry. i just could handle the cancer by itself, but not so much so for the ms added in. like i said, there are really good days when i can do a ton at the gym, and others when all i want is to stay in bed.
the volunteer gig is no more for me. i just hate when i go somewhere and they assume that i will be there. a couple of phone calls to me would be nice. it just feels like i am being used. plus their power and phone/internet are going to be shut off for lack of payment. nope.. i would rather be home watching crap on tv and playing my fb games at home..... especially when there is no chance that it was going to become a paying gig -- not only for me, but for the folks that really have a job there.... they hadn't gotten paid in almost a year. time for me to do my own thing. and look for work that i would really enjoy....
Monday, February 28, 2011
good days and bad days
i know i have been really bad about posting lately, so many apologies for that. not that much has been going on, but the exercising has been absolutely awesome. after the workouts, i feel outstanding. after the shots there are some weeks that feel incredible. other weeks was like this past weekend. but a lot of it may have been my own fault. doing too much.
the day started well. with me going to the gym and having a really nice workout... bursting the bubble so to speak. trying a little harder than i should to give me an edge. i got home to change and get ready for the rest of the day.. i gave myself the avonex shot of the week, in the right leg... and it just felt a lot easier going in. i assumed it was as a result of the muscles being a lot closer to the edge and made the shot easier and less stressful on the body. we then went and did some errands, went to the casino to test our luck (on a whole $5)and then went to the gasparilla expo. we walked around the expo a few times, running into a couple of friends, which was as always a great thing. i did really well there, and did not stall out at all. we went to lunch at what used to be one of our favorite places - pf changs. we got what we always get.... food and service was horrible. i never usually stiff the waiter, but taking 20 minutes to get a refill on soda seemed excessive. we then headed to the vulcan convention. we walked around for a bit, again, i felt good.
saturday came and i woke up with the most horrible pain in the worst way. i could barely move. it took an effort to just get from the bed to the bathroom -- maybe 50 feet. i sent dave off to the convention with a promise to get back home with goodies. i thought that sleep would be best. unfortunately, i could not get enough of it at any one given shot. maybe 20 minutes at a time. dave came home with sandwiches and canolis. i could not even eat. everything was an effort. dave went back to hang out with folks dinner. by the time 10 pm came i got nervy. the pain was horrible. i can't even describe it. i almost was going to have dave bring me to the er, but judging by plant city standards, it was going to be horrible.
i woke up sunday as a new person. i was a bit rebooted. i went to the con feeling good and moving fairly well. everyone said dave seemed a little lost alone. today is even better. i feel like a new person. let us hope this lasts... lessons learned. the shot was too early, wrong leg.... keep it simple silly. i think i did "push it" a little too much.
the day started well. with me going to the gym and having a really nice workout... bursting the bubble so to speak. trying a little harder than i should to give me an edge. i got home to change and get ready for the rest of the day.. i gave myself the avonex shot of the week, in the right leg... and it just felt a lot easier going in. i assumed it was as a result of the muscles being a lot closer to the edge and made the shot easier and less stressful on the body. we then went and did some errands, went to the casino to test our luck (on a whole $5)and then went to the gasparilla expo. we walked around the expo a few times, running into a couple of friends, which was as always a great thing. i did really well there, and did not stall out at all. we went to lunch at what used to be one of our favorite places - pf changs. we got what we always get.... food and service was horrible. i never usually stiff the waiter, but taking 20 minutes to get a refill on soda seemed excessive. we then headed to the vulcan convention. we walked around for a bit, again, i felt good.
saturday came and i woke up with the most horrible pain in the worst way. i could barely move. it took an effort to just get from the bed to the bathroom -- maybe 50 feet. i sent dave off to the convention with a promise to get back home with goodies. i thought that sleep would be best. unfortunately, i could not get enough of it at any one given shot. maybe 20 minutes at a time. dave came home with sandwiches and canolis. i could not even eat. everything was an effort. dave went back to hang out with folks dinner. by the time 10 pm came i got nervy. the pain was horrible. i can't even describe it. i almost was going to have dave bring me to the er, but judging by plant city standards, it was going to be horrible.
i woke up sunday as a new person. i was a bit rebooted. i went to the con feeling good and moving fairly well. everyone said dave seemed a little lost alone. today is even better. i feel like a new person. let us hope this lasts... lessons learned. the shot was too early, wrong leg.... keep it simple silly. i think i did "push it" a little too much.
Wednesday, February 9, 2011
exercise update
i have been going to the anytime fitness regularly since joining. feel amazing after workouts. getting back to the point where i can do a little more each time. wish that my appetite would increase, tho. lost a ton of weight that i really did not need to. i must say the road back looks lots clearer. i think goals will be able to be obtained soon. it is so nice to go, especially since I can now to a point, and i have missed it so. it really feels like a part of my life is back.
i almost said "adios" to the volunteer gig. Dave is right that they just want to take advantage of me; it just is really tough to say "no". Its almost like they depend on me to be here. If i was getting paid, it would be one thing; not getting paid is another. Or if I was getting something more than a thank you. They are planning an event, and I could do the whole thing blind folded. i had a folder with ideas, and they used everyone of them. Did the big chiefs acknowledge that i thought of stuff they did not? Shows to me that I cannot have stuff laying out that they look at. Oh, well, live and learn.
We are 30 days from the Regional Summit, and it just doesn't seem that a ton of folks will be coming. We are going since a bunch of crew members have either national and/or regional positions. I know for a fact we are disappearing for a couple of hours Saturday afternoon/evening to go to the MS Walk in Tampa. Somehow it is a little more important to us. I hate asking, but let me know if you need the link to donate. Every dollar counts. I wish I was able to donate more myself.....
quick dave update: he is doing okay, though sleeping lots. he had lost more weight, but i think its mostly water weight. wish he could go with me to the gym.... it would just do him so much good..... mentally and physically.
i almost said "adios" to the volunteer gig. Dave is right that they just want to take advantage of me; it just is really tough to say "no". Its almost like they depend on me to be here. If i was getting paid, it would be one thing; not getting paid is another. Or if I was getting something more than a thank you. They are planning an event, and I could do the whole thing blind folded. i had a folder with ideas, and they used everyone of them. Did the big chiefs acknowledge that i thought of stuff they did not? Shows to me that I cannot have stuff laying out that they look at. Oh, well, live and learn.
We are 30 days from the Regional Summit, and it just doesn't seem that a ton of folks will be coming. We are going since a bunch of crew members have either national and/or regional positions. I know for a fact we are disappearing for a couple of hours Saturday afternoon/evening to go to the MS Walk in Tampa. Somehow it is a little more important to us. I hate asking, but let me know if you need the link to donate. Every dollar counts. I wish I was able to donate more myself.....
quick dave update: he is doing okay, though sleeping lots. he had lost more weight, but i think its mostly water weight. wish he could go with me to the gym.... it would just do him so much good..... mentally and physically.
Thursday, January 27, 2011
a dave update
this definitely warrants a separate post... (two posts in the blog in one day.... you guys must be thinking, she has flipped)
Dave means the world to me. He has been there through the cancer and the ms diagnosis and just wants me to get better. he knows how much i have missed the running and working out in general. he is not thrilled of the extra cost of the gym, but if it gets me in a better mood to do anything...(in terms of everything including eating and going out instead of being in bed by 9!) it is worth it....
he will be taking care of himself again starting tomorrow. i was able to get an appointment for him at the local watson clinic for a check up and to get refills of some of his medication. the pharmacy next door to the clinic offers FREE drugs for certain diabetic prescriptions. he will be so much better once he gets the medicine back in him. the out of pocket cost isn't that great at the local cvs, but free is better. maybe this doc will be able to tell him what is wrong and why he falls asleep with me just looking at him..... i will update you guys as soon as i know something.
Dave means the world to me. He has been there through the cancer and the ms diagnosis and just wants me to get better. he knows how much i have missed the running and working out in general. he is not thrilled of the extra cost of the gym, but if it gets me in a better mood to do anything...(in terms of everything including eating and going out instead of being in bed by 9!) it is worth it....
he will be taking care of himself again starting tomorrow. i was able to get an appointment for him at the local watson clinic for a check up and to get refills of some of his medication. the pharmacy next door to the clinic offers FREE drugs for certain diabetic prescriptions. he will be so much better once he gets the medicine back in him. the out of pocket cost isn't that great at the local cvs, but free is better. maybe this doc will be able to tell him what is wrong and why he falls asleep with me just looking at him..... i will update you guys as soon as i know something.
update
i did the one thing i have been wanting to do for the past two years yesterday, i joined the local anytime fitness. i am once again starting my fitness routine. i have an appointment tomorrow with a trainer who will help me get in the right direction. it excites me beyond words. i will be heading there today to check out one of the eSpinner bikes. I have truly missed spinning and working out in general. Breaking a sweat would be nice. I do know that getting back in shape is not a far cry. I have my good days and bad ones; but the good ones (like today) far exceed the bad ones. Maybe the working out will totally elminate the bad ones. I can hope.... the gym folk are telling me that i am strong minded and nothing will stop me from my goal of a marathon by the end of the year....
Thursday, January 13, 2011
Its cold outside
Its really cold for Florida. Its only 37 degrees now, but is supposedly feeling like 32. If we were in New England I would almost say that it was gonna snow.
I am feeling pretty good these days, but dying to get out there. I am still looking for a cheaper gym to join, even if its only for 45 minutes at a time on the dreadmill or elliptical. I would love a pplace like Anytime Fitness that has classes, because i think a spin class would be great. Anything to get back in shape and be moving. And I got clearance to do so as long as i do not get too warm. i think the bad thing for me is cold. i really feel the difference in my feet and legs when i am just a little cold.
I just want to be on the roads again and training. The marathon dream is still alive. It is just so hard to be on the side lines.
I am feeling pretty good these days, but dying to get out there. I am still looking for a cheaper gym to join, even if its only for 45 minutes at a time on the dreadmill or elliptical. I would love a pplace like Anytime Fitness that has classes, because i think a spin class would be great. Anything to get back in shape and be moving. And I got clearance to do so as long as i do not get too warm. i think the bad thing for me is cold. i really feel the difference in my feet and legs when i am just a little cold.
I just want to be on the roads again and training. The marathon dream is still alive. It is just so hard to be on the side lines.
Friday, January 7, 2011
Doctor appointment outcomes
OK, just to let you guys know about the latest outcomes about both the neurologist and endocrinologist appointments this week
The neuro made me happy beyond words. He said "its okay to exercise". I am now looking for somewhere (cheap) to go and get back into shape. YEAH. Its been way too long.
The endocrinologist did an ultrasound and i have to go back in 6 weeks for another. she thinks she saw something in one of the lymph nodes, and wants to make sure it is still there before a biopsy/possible surgery is done. Follicular Thyroid Cancer is scarey. But just a little bit. I do know i have to keep having this checked forever. She said lots of folks hear "remission" and just don't do anything more. Won't be like that for me. I have to make sure I am around for a long time for Dave. One thing I forgot to ask was about the insomnia. Its nasty these days and maybe some Ambien will help.
The neuro made me happy beyond words. He said "its okay to exercise". I am now looking for somewhere (cheap) to go and get back into shape. YEAH. Its been way too long.
The endocrinologist did an ultrasound and i have to go back in 6 weeks for another. she thinks she saw something in one of the lymph nodes, and wants to make sure it is still there before a biopsy/possible surgery is done. Follicular Thyroid Cancer is scarey. But just a little bit. I do know i have to keep having this checked forever. She said lots of folks hear "remission" and just don't do anything more. Won't be like that for me. I have to make sure I am around for a long time for Dave. One thing I forgot to ask was about the insomnia. Its nasty these days and maybe some Ambien will help.
Tuesday, January 4, 2011
New Years -- so far
We had probably THE best time at a NYE party since the days at Davenport. I really miss those days for some reason, but the Haven friends are really getting up there with our McAuliffians. Its not the same by far, but still a good time at the bar.
I have been feeling really good lately, and my Avonex seems to be doing some good. I am giving myself the shots, and as freaky as it is to do that, all I can say it is making a difference. Working out again is the BIG goal, and I was waiting until yesterday at the neurologist to get confirmation that it is okay to exercise. The big thing is not to get to hot. I know this is a problem with me, but I can tone things down enough so that I do not get to overheated as it exerbates symptoms. I am thinking that inside working out in AC is the trick. I would LOVE to get a treadmill for the house again, but one never knows. $$ is a huge factor. THe fact that I got clearance to exercise again, excites me to no end. I found a 24 gym not to far away from us that has SPINNING classes; and pilates. That is better than the Anytime Fitness in town, just for the use of the spinning bikes.
THe doc did not think much of the Ampyra as I walk to well for it to make a difference, plus the side effects are not to great. He also did not think much of the Swank Diet, thinking what I have been doing on my own -- limiting alcohol and stuff is good enough. I will look at the Best Bet Diet (I think that is what it is called) for diffeences. He did emphasize to take some good Vitamin D (in milk) and since I am avoiding sun for what I am missing.
I am very excited to see my JOR and :LCAR peeps this week. Especially after being given news that I can "officially" start running and exercising again. Just have to remember to keep it nice and easy in the beginning
I have been feeling really good lately, and my Avonex seems to be doing some good. I am giving myself the shots, and as freaky as it is to do that, all I can say it is making a difference. Working out again is the BIG goal, and I was waiting until yesterday at the neurologist to get confirmation that it is okay to exercise. The big thing is not to get to hot. I know this is a problem with me, but I can tone things down enough so that I do not get to overheated as it exerbates symptoms. I am thinking that inside working out in AC is the trick. I would LOVE to get a treadmill for the house again, but one never knows. $$ is a huge factor. THe fact that I got clearance to exercise again, excites me to no end. I found a 24 gym not to far away from us that has SPINNING classes; and pilates. That is better than the Anytime Fitness in town, just for the use of the spinning bikes.
THe doc did not think much of the Ampyra as I walk to well for it to make a difference, plus the side effects are not to great. He also did not think much of the Swank Diet, thinking what I have been doing on my own -- limiting alcohol and stuff is good enough. I will look at the Best Bet Diet (I think that is what it is called) for diffeences. He did emphasize to take some good Vitamin D (in milk) and since I am avoiding sun for what I am missing.
I am very excited to see my JOR and :LCAR peeps this week. Especially after being given news that I can "officially" start running and exercising again. Just have to remember to keep it nice and easy in the beginning
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